| 書目名稱 | Public Policy in ALS/MND Care | | 副標題 | An International Per | | 編輯 | Robert H. Blank,Jerome E. Kurent,David Oliver | | 視頻video | http://file.papertrans.cn/764/763734/763734.mp4 | | 概述 | Focuses on public policy, patient care, research and ethics of ALS/MND from an international perspective.Includes chapters written by ALS/MND experts representing twenty-one countries.Strong backgroun | | 圖書封面 |  | | 描述 | This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions.?. | | 出版日期 | Book 2021 | | 關(guān)鍵詞 | ALS/MND and Government Action; Governmental agencies and ALS/MND; ALS/MND Organizations; ALS/MND advoca | | 版次 | 1 | | doi | https://doi.org/10.1007/978-981-15-5840-5 | | isbn_softcover | 978-981-15-5842-9 | | isbn_ebook | 978-981-15-5840-5 | | copyright | The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Singapor |
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