Titlebook: GDPR and Biobanking; Individual Rights, P Santa Slokenberga,Olga Tzortzatou,Jane Reichel Book‘‘‘‘‘‘‘‘ 2021 The Editor(s) (if applicable) an

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Santa Slokenberga,Olga Tzortzatou,Jane ReichelPresents the most up-to-date overview of European data protection frameworks for biobank research.Offers a comprehensive and in-depth analysis of genetic data governance at the EU level.Shares valuabl

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https://doi.org/10.1007/978-3-030-49388-2Biobank research; GDPR; Article 89 GDPR; Data protection; Informational privacy; ELSI in genetics and gen

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https://doi.org/10.1007/978-3-322-98813-3eal’ Brexit). The chapter concludes with some thoughts on possible longer term futures. The main message is the deep uncertainties surrounding Brexit and what it means in both legal form and in practice.

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https://doi.org/10.1007/978-3-662-40125-5o stricter requirements are set, open consent can be used when tissue is obtained directly from individuals for research purposes. However, if tissue is initially obtained for other (research) purposes, further research use requires written consent in the case of blood, while due notification will suffice for most other types of tissue.

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